Neuroendocrine Cancer UK is a national charity focused on supporting individuals living with neuroendocrine cancer and raising awareness of this uncommon and often misdiagnosed disease. Our mission is to provide information, support, and guidance for patients, their families, and healthcare professionals, while funding vital research to advance the understanding and treatment of neuroendocrine cancer.

Neuroendocrine cancer is a type of cancer that begins in the neuroendocrine cells, which are found throughout the body. These cells release hormones that can regulate many body functions, and when they become cancerous, they can grow in almost any organ. Neuroendocrine cancers are often slow-growing, but can also be aggressive and hard to diagnose due to their symptoms often mimicking other conditions.

At Neuroendocrine Cancer UK, we provide information on the various forms of neuroendocrine cancer, offer practical support for patients and families, and advocate for improved treatments and care pathways. We collaborate with research institutions, healthcare providers, and other cancer charities to make sure neuroendocrine cancer gets the attention it deserves.

We aim to raise awareness, provide vital patient support, and fund cutting-edge research. Through our dedicated efforts, we are committed to improving the lives of those impacted by neuroendocrine cancer and ensuring that more people understand the challenges faced by those living with this disease.

We’re here to help from diagnosis, through treatment and beyond.

If you, or someone close to you, has been diagnosed with neuroendocrine cancer, you might be finding it’s harder than ever to get the vital support you need right now. Being diagnosed with a rare or uncommon cancer can have additional consequences, not least in terms of awareness, early diagnosis, and access to expertise. Feelings of isolation, fear, uncertainty, and anxiety are not uncommon. But during this time of increased uncertainty and isolation, we’re here for you, whatever your question.

There are a range of ways we can help you from clear, easy-to-understand information to emotional support when you need to talk.

Helpline Enquiries

0800 434 6476

For neuroendocrine cancer and health enquiries.

Tuesday – Thursday 10:00am – 4:00pm

Excluding Bank Holidays.

For general or health-related enquiries, please complete our contact form - Ask our Helpline Team a Question . You may find answers to your query in our handbook.